I remember very clearly the day we received the devastating news are beloved Grandson had Duchenne Muscular Dystrophy. Now I knew of Muscular Dystrophy, I had watched may telethons over Labor Day weekends and of course seen firefighters collecting for it over the years. But this Duchenne what was this? It did not take long for me to discover how our lives would never be the same again. But I left the hospital full of hope. He was young a cure would surely be found in todays medical research. That was over 5 years ago and yet there is still nothing available as a cure.

Please FDA do not take away my hope, but most of all do give my Grandson a chance for his dreams to come true.