Our son was only diagnosed one month ago. He will be six years old in January. Already our lives have been drastically altered. There is so much to think about and worry about now. Drug treatments, physical and other therapies, school issues, social issues, self esteem, financial strain, stress, worry...this is just the beginning of what we are up against. Today our son can walk, run and climb stairs, but some days he is so tired and we see him lagging behind his friends in height and ability. The thought of him gradually losing all these faculties overtime is heart breaking. But we are hearing more and more about hope through innovative research and treatment.
Please help our simple dream of our son leading a normal life become a reality. Thank you.