Nikita is 9. He was diagnozed, when he was 4. Since that moment our life turned into before and after. Year by year he needed more assistance. It was hard to realize in one day, that all your dreams crashed, that your child will never run like others and will never be able to play his favorite football. Boys, affected by Duchenne become weaker and weaker day after day. They loose their muscles and we cannot stop it!
Please let our boys hope for the future normal life. Accepting the drug today we can safe thousands of lifes and more thousand in the future! Our boys want to live! Special thanks for all who support Duchenne families!!!!