I'm unsure whether I should share my story but feel I must, we lost our most precious boy Matthew (I miss saying his name so much) we lost him 2 years & 3 months ago he was 19. We cared for him so carefully and would not let the wind blow on him. His care under the transitional care team was not what we expected to say the least. At times I was shocked as too what I was not not told to expect, for example referring through my go for any concerns regarding Matthews care. We wanted to share, there is a referral service through the local ambulance team.,which we were not aware of, apparently all ambulance services offer this service, through your go you can refer you son/daughter and if there was an emergency in your home a paramedic would attend not just ambulance crew, the night we lost Matthew we had 2 ambulance crew attending and I didn't feel confident in their knowledge or just to listen to what I was telling them was best for our boy. I will always feel what if for the rest of my days.
Ensure you check with your go don't be fobed off fight for what's best for yor child. God bless.
The jones family x