Hello: My name is David Listerman and I am the proud father of Gunnar Listerman. Gunnar was born on November 22 1991 in which that was the happiest day of my life. On Dec 18th 1994 when he was diagnosed with Duchenne MD that was the second worst day in my life. Having the honor to have Gunnar in my life and as he grew older having to be asked 'Dad am I going to die?" or "dad do you think they will find a cure soon enough?" and trying so hard to remain positive while inside the sadness was all consuming.
On August 13th 2011 the saddest day of my life I lost Gunnar to this insideous disease. I can't even explain the sadness that I have experienced in the past and the present. Gunnar and I spoke how come we can find 10 different drugs to make an erection last for 4 hours but we can't come up with a cure that is terminal to so many boys. Please consider allowing these boys a chance at a cure. They are in a nothing to lose situation and maybe just maybe in the not to distant future no parent or child has to experience the sadness and loss that I will have to experience the rest of my life.