My BRAVE Story: He is planning on being an independent adult with a full life expectancy

My son is Alexander. Alexander is 15 and a half, and I should be giving him driving lessons, but I can't. He has been confined to a wheelchair since he was 13 and cannot work the pedals. He now also lacks the upper body strength to operate a hand controlled vehicle. He works hard to take his medication, do his therapy, and takes school seriously. He is planning on being an independent adult with a full life expectancy. However, that will be for nought if the FDA does not grant accelerated approval for the medications coming before it for the treatment of DMD.

Views: 127

Comment

You need to be a member of PPMD Community to add comments!

Join PPMD Community

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service