Some of you may know us and some may not. My wife and I founded a small nonprofit, Ryan's Quest after learning of our son Ryan's diagnosis of DMD 2 years ago. Like many of you we threw ourselves into finding ways to raise money and awareness for DMD. We have a great relationship with PPMD and have helped fund a handful of projects and will continue to do so in the future. This February we are hosting a Valentine Ball to mark our 2 year anniversary of founding Ryan's Quest.
I am trying to collect pictures of boys with DMD to include in a short slideshow that we will be showing the evening of the event and possibly include on our website. I want those who donate, attend events, help spread awareness and volunteer their time to know that this disease goes much further than Ryan Schultz.
If you would be willing to send a picture with a first name to us we would be grateful. Please send the pics to firstname.lastname@example.org.
I know attending events becomes tiresome, but if you are interested in coming and are around NJ please visit our website for information at www.ryansquest.org
. It should be a great evening. We will be honoring Dr. Brian Tseng of MGH in Boston for his tireless work in pursuing a treatment for our boys.
David & Maria Schultz