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Light up the Lines!! Urge Your Senators to Vote YES on 21st Century Cures!

We need you to call your two US Senators TODAY with one simple message – VOTE YES ON 21st CENTURY CURES!!

 

With just days remaining in the current Congress, this bill represents the extraordinary efforts of our PPMD community’s work and outreach with Congress. We are delighted to report that the version in front of the Senate today includes almost every provision that our Duchenne community championed and led throughout this process. We are in the end zone!

Please take a minute to contact your Senators.

 

1) Make a Phone Call:


Please take a moment today to make two phone calls – one for each US Senator of your state. We make it easy! Click here to search for your senators contact information.

 

2) Send an Email:


We also encourage you to send an email! Follow these simple instructions to send an email to both Senators.

 

Highlights from This Historic Bill:


21st Century Cures will help bring drugs and devices to market more quickly and at less cost by making needed reforms to the FDA, including:

 

  • Provide $4.8 billion to National Institutes of Health
  • Provide $500 million to the Food and Drug Administration
  • Increased transparency at FDA about how they incorporate patient data
  • Expanded Access policy – asking companies to tell patients when they will allow for such a program
  • Advancing Targeted Therapies Act – using data from past trials on future applications
  • Priority Review Vouchers extension (incentive for industry to work within our Duchenne space)
  • A strong section on Patient Focused Drug Development

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