Today I decided to stop wondering what it might be like to see Cody
shoot a basket during a basket ball game. Or see Josiah hit a baseball
and run like the wind to get on base. In stead I took a deep breath and
sat down be side my sons as they put together a new Lego kit. I leaned
in between them fitting myself in the tiny space between their wheeled
chairs. Happily they made efforts to pull themselves a few inches over
to allow me space enough to be apart of their fun. Cody eagerly showed
me the progress he had made on the building he had created. Josiah
quietly worked on the new kit the tooth fairy had left him the night
before. I looked around the beautiful Lego room I had created for
them. Buildings and vehicles that they had put together lined the
shelves. This was the world my sons knew. This was one of their past
times they had grown to love.

Marveling at the patience it took to work their weakening hands and arms
I leaned over to give them both a little kiss on the head. I watched
Josiah look at the directions and search for the correct piece. Cody
chatted on about how fast Josiah worked and how proud he was for him.
Together we sat, away from the outside world lost in Lego land. My sons
were happy, they accepted this was what they could do. I wanted to be
at peace with that acceptance. I wanted to embrace all the enjoyment
they felt building with Legos. I felt happy that I could give them a
place to be creative, a place that they could shine and display there
skills. I was so very proud of the abilities they possessed with such
little strength. It pained me though knowing that this could and most
likely would someday become an impossible task for them. Our friends
and relatives pushed and cheered to help their children become
athletes and dancers. The world I knew loved stronger and faster. The
world we lived in did not know the magnitude of strength it took for
Josiah or Cody to build a small structure. Or the concentration it
took for either of them to follow instructions. My two younger sons
would never have the athletic abilities my friends shared about their
own children. They would struggle more each day to use their dying
muscles. Inside I was horrified at what was inevitably to come. I knew
thinking past today would however take the joy we held on to at this
moment away. So Legos was our now. I picked up some blocks asking
Cody if I could help make his wall on his house stronger. He smiled at
me saying "mom you are good at finding ways to make something be
stronger." Hugging him I said "sometimes being strong is all I

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Comment by Rebecca Saulsbury on February 6, 2011 at 11:55pm
I love this. 'Lego athletes' says it all.
Comment by Rita Felling on January 19, 2011 at 12:31am
thanks for reading
Comment by Shellie Buriak on November 19, 2010 at 6:07pm
Would love to see all their Legos. My son Luke who is 8 has many Legos also. He is into the city and Star wars Legos. We are running out of room,but he loves them. Its nice to have the distraction into another world of Lego's. Luke even wished for a trip to Legoland in California for his make-a-wish trip. We went this summer. He was in pure heaven. He could not get enough of all the Lego displays. Keep strong!!!!!!
Comment by Kim Maddux on November 17, 2010 at 4:28pm
Very touching. Thanks for sharing. My 11 yr old son Alex is a huge Lego fan too.

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