In case you have not heard, Jett Foundation is once again providing an opportunity for siblings, friends, family to "ride for those who can not". Currently we have 12 cross country youth riders, several additional riders that will be doing "legs" or "sections" of the ride and adult chaperones.
We will be sharing the stories from the road with all of the viewers here.
If there is anything that you can do to help, please advise.
You can follow the entire journey, learn about the riders and read their stories on www.jettride.org.
Here is the most recent press release, the Dallape family is hoping for a great turnout with other families affected by DMD - please join them if you can.
Young Cyclists Roll Through Cedar City and Hurricane, UT raising funds and awareness
for Boys Living with Duchenne Muscular Dystrophy
Hurricane, UT July 10, 2010 - 20 young people with the Jett Foundation (a national non-profit committed to finding a cure for Duchenne muscular dystrophy) are cycling through Hurricane on their journey across the United States. Jett Riders will be staying with local residents Jerry and Suzanne Dallape who have graciously opened their home to the entire JettRide team. “We are thrilled that the JettRiders will be coming through our town and staying with us” said Jerry Dallape who’s 9 year old son Ewan was diagnosed 3 years ago with Duchenne muscular dystrophy. “There are actually quite a few boys with Duchenne in our area, so we are gathering those families together to meet the kids who are riding. It will sure give them a boost before the arduous trip through the Rockies!” The cyclists travel from California to New Jersey in an effort to raise money and awareness for Duchenne Muscular Dystrophy (Duchenne) - the most common lethal disorder diagnosed during childhood today."Our JettRiders set out to cross the country with the same determination that those touched by Duchenne show on a daily basis. We are very excited to once again organize this amazing journey." said Jett Foundation Executive Director Christine McSherry. "Jett Foundation provides the opportunity; it is the riders who are challenging themselves and challenging Duchenne."The group will be biking for 9 weeks, traveling through 14 states, 30 cities and towns and logging 3,700 miles raising awareness and urgently needed funds while uniting families and communities affected by Duchenne nationwide. In order to participate in the trip, each rider raised at least $4,000 to help fund the trip costs and Duchenne research efforts.Based in Kingston, MA the Jett Foundation is a non-profit organization dedicated to increasing worldwide awareness of Duchenne Muscular Dystrophy with the purpose of raising and appropriating funds for research that will realize a cure for the disease and ensure that affected children will have the opportunity to enjoy a full life. After nine years of steady progress in the fight against this dreadful disease, the Jett Foundation is known throughout the country as a leader, funding promising research totaling over $2 Million and as a strong advocate in this battle against Duchenne. For more information contact Christine McSherry, Founder, Jett Foundation 781-585-5566 or email@example.com or visit our website at jettfoundation.org
From our JettRide Tour Leader;
"Good evening from Fallon, NV parents and friends. I apologize for not sending my daily muse before the 7 day of the tour... It has been quite the week. We have had to work through:
New bike issues
No cell service for 2 days in the sierra nevadas
Two 105 degree days
Shuttling riders many miles
And a slew of other things
All of which kept us busy until the late night. I was just too tired to write. My top priority is your children. We have done a great job getting them trained to our rules, routines, and the road. The staff was commenting today how much change we have seen in just a week. Teamwork, maturity, attitudes, helpfulness.
Today was the best riding day of the tour. Everyone that rode, rode the entire day. A metric century or 62 miles. We celebrated with a trip to DQ. We completed forty before lunch and finished the day at 3:30. The teens have been organized in groups of 3/4 based on riding pace. The staff rotate through the groups as their leader. We are staying at the county fairgrounds in Fallon and there are horses everywhere because of the upcoming rodeo this weekend. Btw everyone is asleep. We typically hit the tents at 9 PM after a group activity. It was earlier today.
The past week we instituted SHOTGUN FOR THE DAY. A teen can not ride a day and instead help the SAG driver navigate shop and do the breaks and lunch. It provides an extra day of rest for the rider and help for the SAG driver. It is optional and the teens have signed up two weeks in advance without knowing the route for the day.
We also are doing SECRET FRIEND as a way for us to watch out for each other. The SF does little special things for their friend during the week anonymously. Like fill their water bottle, leave a candy bar on their bike seat, etc. It is a great team builder.
about all for now. If you know anyone who might be interested in my daily email send me their email address. Also the next mail drop is cedar city UT on July 9. Let me know if you need the drop list or parent letter.
We are doing better on picture uploads now that we are in a routine. Checkout JettRide.org. Don't forget about fundraising and spreading the word avout the ride and DMD.
Tomorrow we ride into the mountains again...
Will catch you up on the previous days soon... I am falling to sleep writing this.