As you know, we head into an important year of Advocacy with the muscular dystrophy community determined to Reauthorize the MD-CARE Act. For the past few months PPMD, FED, and MDA have been working together on the legislation and coordinating efforts with our champions on the hill. You may have heard about ways you can get active in this effort by coming to DC or advocating from home. 

We issued a 50 state challenge in the hopes of getting representation from Duchenne advocates in each district and every state. You heard the call to action and you responded! Here is an update on coverage by state and district to date:


Attending the Advocacy Conference in Person

We currently have 30 states and 69 districts covered by advocates attending the DC Conference in person. Please consider adding yourself and your family to that roster!

(Not sure what district you live in? Find out now)


Packet Drop Off Submissions

To date we have the following states and districts represented in our packet drop off initiative. This list is great, but we need much more coverage! If you see your district listed, we still want your help. The more people who add their voices to this message the better. Add you name to our packet drop off.

To date, we have collected 49 out of 50 states and 353 districts out of 435. 

Let’s get all 50 states and 435 districts covered with a family or friend who cares about changing the outcome in Duchenne!

(Not sure what district you live in? Find out now)

We will update the spreadsheet daily! 

Ryan Fischer, Director of Outreach & Advocacy
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