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Imperatives for DUCHENNE MD: A simplified guide to care for Duchenne published in PLOS

Providers care for many people, with many diagnoses – far too many for any one health care provider to be an expert in them all. Any busy provider would find it difficult to have the time to look over a two-volume document like the Care Considerations [PDF], or even a several-page document like the Family Friendly Care Considerations [PDF], while maintaining a busy clinic. PPMD and a small group of international experts (from UPPMD and TREAT-NMD) have created such a one page snapshot of Duchenne care – Imperatives for DUCHENNE MD (PDF). This information is meant for health care providers, but can also be used by patients and parents advocating for comprehensive Duchenne care for themselves or their children. PPMD posted this tool in April 2014. Recently, the Imperatives for Duchenne MD have been published. We are very pleased that this resource is now available to the greater medical community.

Related links

Care Guidelines

Imperatives for DUCHENNE MD (PDF)

PLOS Publication

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