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Help us raise $250,000 to fund CRISPR/Cas9.


After a few months of relative quiet, noise has returned to the Killian house in full force! For the holidays, all five kids are back under one roof with a revolving door of friends and endless groceries. Even with all the chaos that entails, this is my favorite time of year.

My family is particularly excited this year because our extended family—you, PPMD, and the rest of the Duchenne community—has been given a gift of hope. With the first Duchenne drug approved, there is a new energy in the air. Though this therapy won’t help our 15-year-old son Sam, we are overjoyed at the accomplishment—and are excited to take advantage of the momentum we’ve built in the fight to end Duchenne.

That’s why my family and I are matching every online donation to PPMD until we’ve raised $250,000! Your gift will help PPMD fund important research into CRISPR/Cas9, but we have to reach this goal by 12/31—please donate today!

In a disease that is characterized by daily losses, the CRISPR/Cas9 gene-editing technology could essentially stop Duchenne progression in its tracks. But there is still a lot we don’t know, and we need your help if we are going to find out what this therapy could do.


We need to help PPMD raise $250,000 so that we can understand exactly how treatments like CRISPR/Cas9 can help the people we love who are living with Duchenne. The potential is incredible. Please donate today, and we will personally double your gift.

I have been a board member at PPMD for 10 years, serving as Board Chairman for 3 years and currently serving as Treasurer. I know this organization inside and out. Pat Furlong has assembled a team of the brightest minds in the Duchenne space—people who think of my children and your children as their own. We couldn’t be in better hands when it comes to an organization that is thinking ahead, changing the landscape, and doing everything in its power to understand Duchenne from every angle.

An investment in PPMD this holiday season is an investment in the future of Duchenne research. Help us find out just how much of a difference gene-editing can make—donate today to help PPMD raise $250,000 by 12/31, and I will match your gift dollar for dollar!

I hope you and your family enjoy this holiday season and take a moment to appreciate all the good things we each are blessed with. My family is lucky to have families like yours on this Duchenne journey with us. We’ve seen this past year what we can do—and I know that, together, we can seize this moment to do so much more.

Happy holidays,

John, Stefanie, Abbie, Nick, Ben, Sam, and Sophie Killian


P.S. Sam wanted me to remind you one more time that every dollar you donate online to PPMD between now and the end of the year will be matched. (He would also like me to double his allowance. Maybe…if we reach our goal!) Give today to support CRISPR/Cas9 research and double your donation!

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