My seven year old son jacob, has been sick for over a week now with bronchitis. We were riding to school one day and he looks over at me and says mama will i be better by christmas. Of course i say yes thinking he was talking about the bronchitis. He then looks at me and says you had whats wrong with me when you were little and you got better. It broke my heart to look at him and say no baby i meant the bronchitis. Of course he looks at me and says OH real sad.
How do you keep from having your heart broke while all the while breaking his? He wants to be like the other kids but he cant be. He has already lost most muscle in his hips. He cant stand on his heels,he is loosing muscle in shoulders, trunk, and back. Theres only so much i can do for him. Any advice on how to help him deal with the changes that are coming would be greatly appreciated.