The 9th Annual Coach To Cure MD on September 24 is shaping up to be the biggest year yet!
Duchenne mom Kim Powers shares why this is the year you should get in the game and help us #TackleDuchenne:
I think everyone in our community remembers the first time they heard the word Duchenne. For us, it was when our 7-month-old son, Trent, showed abnormalities on a blood test. The doctors quickly braced us for the likely outcome of Duchenne. We agonized over this potential diagnosis for three months until on Tuesday, September 22, 2015 when we received our free genetic testing results from PPMD’s Decode Duchenne program and our son was officially diagnosed with Duchenne.
The timing of Trent’s official diagnosis could not have been stranger for this football family. My husband, Trevor Powers, was Linebackers Coach at Princeton. The week we received Trent’s diagnosis was the week of Coach To Cure MD – an event that my husband had participated in for most of his professional career. Every year, he and his colleagues wore the patch on behalf of a community he was not entirely familiar with. In 2015, we joined this community and the patch held new meaning.
This year, I am hoping to take Coach To Cure MD participation to a whole new level. We are asking coaches around the country to step up a notch and not just wear the patch, but raise money for PPMD.
To say that the initial response has been enthusiastic is an understatement! The 9th Annual Coach To Cure MD on September 24 is shaping up to be the biggest year yet.
Now it’s your turn to get in the game!
Participation in Coach To Cure MD has never been easier.
From a traditional cook-out tailgate party at the game to a house party with friends and family, or even a gathering at a favorite local restaurant or bar, a tailgate party is a great option. PPMD can provide you with some great materials to make your party all the more festive and informative.
REPRESENT OUR TEAM
Some schools request families to be part of their Coach To Cure MD Day. We need YOU to be there on the field representing OUR team! See if there are any schools near you to join their game day experience.
Football is obviously a huge part of our life.
It’s a time when friends and family come together to eat, drink, catch up, and watch the game. As a community, let’s make September 24 more than just another game day though. Let’s celebrate the incredible people in our lives living with Duchenne and let’s raise money so that we can tackle this disease once and for all.
Enjoy the rest of your summer and thanks for letting me share my story!
– Kim Powers