2 years ago I was going through some ruff times. I was trying to do it all. I have 5 children all together 3 with DMD. There was a school nurse that asked me a question that I will never forget. For one did I know what birth control was and why did I decide to have children. She thought it was irresponsible to continue having children after I found that my first son had DMD. She wanted to know why I didnt abort the other children when I knew before I had them that they Could possible have DMD. I was just wondering if any one else has sufferd abuse from schools also.
Was I wrong to have children was I irresponsible. Was I just thinking about myself when I had children. How do we get over the guilt of being carriers and get on with our lives?????? This disease SUCKS!!!!!!! Why do we feel so helpless and so alone.