My son is almost 4 1/2 and is not talking. He has some words, but it is hard to understand him. He has speech therapy 3 times a week and all the Dr's say he will talk. Has any other DMD mom or dad experianced this? He understands almost everything. This is my first blog. I hope someone can help. Thank all of you......SINDY

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Comment by Tracy Sullivan on May 19, 2009 at 3:50pm
Hi Sindy, We are involved with a study with Columbia University, about the cognitive effects of DMD. Michael did not have trouble speaking, but he certainly did alot of screaming and misbehavior and that's how we got in touch with Veronica Hinton and this study. Their website is www.columbia.edu/cu/md, visit that site , I think you'll find it helpful. I'm sure you can email them with questions you have. Veronica Hinton and Robert Fee are very helpful and concerned about improving the quality of lives of our boys. I misplaced your email and phone #. If you have mine please send me an email.
Comment by Sindy Boldizar on April 28, 2009 at 2:24pm
I would like to thank all of you for your input. Now I know others have experienced this also and I we are not alone.
Comment by Teresa on April 24, 2009 at 7:26pm
Yes with all three of my boys with dmd Jeffery now 16 started talking to where you can understand him about 4 christopher now 6 it is really hard to understand him I can but no one else can. Joseph who is now 3 1/2 communicates by screaming and you can not understand a word he says. They have been in speach therapy but its more developmentsl
Comment by Tanya Fleming on April 23, 2009 at 9:28am
I am glad there is no hearing issues, we never had any of them either. I remember his Brother Joshua didn't talk until he was almost 4 and now he doesn't shut up LOL we tease him all the time. Watch out Gregory will take off and then you will not even remember him not talking. Joshua is 15 and will ask every question 3 or 4 times now in different way, so hang on it will take off soon, I am sure of it.
Comment by Sindy Boldizar on April 23, 2009 at 8:05am
Tanya,
Thank you so much. We have been dealing with this problem for yrs now. His hearing is perfect. He has been to the best ENT's in NJ. He had tubes put in over a yr ago and he continues to get checked. All his Dr's say he is going to talk. It is just good to know other people have had this problem and it ended happy.
Comment by Tanya Fleming on April 22, 2009 at 11:05pm
Yes my son Justin in the Picture here has had speech problems his whole life, he didn't even speak clear enough for us to understand him until he was about 7 he is 12 now and I understand pretty much everything, he says, but there are some words that start with an S for example he goes to Sparta School, but to hear him say it, it is Farta Cool it is cute to us. Just keep talking to your son and he will come around hopefully, as long as the Drs. don't think there is a hearing problem.
Comment by Sindy Boldizar on April 22, 2009 at 10:45am
Gregory has been tested for hearing and has tubes in his ears. Thank you for your help. I am so happy i found this site.
Comment by cheryl cliff on April 21, 2009 at 4:22pm
My husband and I thought our son, now 10, would never start talking. Like your son, Alexander knew what we were saying, he just wouldn't respond with words. We knew he could say some things but seemed reluctant to expand his vocabulary. We did speech therapy for awhile too...keep with it...if your son turns out like Alexander things will start to work. We did a hearing test and found his hearing was perfect.
Comment by jenn on April 21, 2009 at 3:02pm
my 7 year old son max was diagnosed as deaf as a baby, he used american sign language to communicate until he was about 3 years old, then he began to talk and to test normally for hearing. we think it was a speech delay due to a processing issue, the good news is he is 7 now, and only has a mild delay. i have heard that DMD boys may have an auditory processing problem, but it usually corrects in time.

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