Hi, my name is Donna. This is my first try at starting a blog, not sure I understand the whole concept but here goes. I am the Nana of an 11 year old with Duchennes. In reading alot of the blog entries I have noticed so many single parent families. It breaks my heart to see this,,this was how it first was with my daughter also when we found out our Dykota had Dychennes at age 4 she had been newly married to a wonderful man who has taken every interest in Dykota to heart as if he was his own. Up until then she had been pretty much on her own in the parenting dept. That was where we grandparents came in. We have become such a close family through all this. Wow,,I am rambling...and have gone back way too far. Have a great day if there is anyone out there,,,lol.

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Comment by Donna Churchill on February 11, 2009 at 9:52am
Had a terrible scare last week. Dykota was rushed to the hospital, they thought he might be having a heart attack. Thank God it wasn't. He called me from the hospital and I asked him how he was doing. He said "good nana, but not too good". I said why and he said " Nana, they told me I am full of poop." and he laughed. He is such a good kid and able to keep his sense of humor through all of this. We were so happy to find this was all it was (compared to what it could have been). But boy it was an eye opener, letting us know a part of what is in the future. Very scarey thoughts creep in more often now. Have a great day everyone!
Comment by Donna Churchill on February 4, 2009 at 8:58pm
Hey I made it back. Wow,,,just spent some time reading others blogs. I find it is a tough thing to do knowing it is all coming and time sure does fly. I have found that whether I am typing here, talking in person or reading blogs it all turns out the same for me,,,tears! I am glad I have started this blog,,,I think it will give me a place to vent as I know I could never talk to my daughter about some of my thoughts. She certainly has enough to deal with day to day. It's seems to be now that almost every time we see him we notice something different...We never say it out loud though and then after a while my daughter will ask me if I have noticed such and such and I will then tell her yes. It sure isn't getting any easier
Comment by Gina Manning on February 2, 2009 at 10:08am
I think it is wonderful you are there for daughter and grandson. Both of my parents and my husbands mom are gone and my father-in-law is too far away to help. I am lucky to have my sister and sister-in-law I also have a great aunt and uncle that the kids call grandma and grandpa. I am also very lucky in having a handful of close friends that really stand behind us and are there at a drop of a hat.
Comment by Jessica Rownd on February 2, 2009 at 8:44am
I have never had a blog, but I think you are allowed to ramble. As for grandparents making a difference, my husband and I are very lucky to have our parents live close by. They definately help us get through the tough times. My mom even comes to doctor appts with us and Wyatt so we can hear what the doctor says instead of trying to keep Wyatt entertained. God bless all of the grandparents out there who make it easier for us. Have a good day.

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