July 24th will be 13years on this DMD journey with my son...I must say it has been one heck of a ride! Luke is now 17, going into his senior year which I never thought would happen...He just took his college aptitude test...he is going into AutoCad...He is smart, compassionate, caring, brillant with a great sense of humor and I can honestly say we are friends tackling this DMD thing together!
Here are Luke's chapters from his life journey:
Crawled at 8 months
Walked at 18 months
Diagnosed at 4
First bike at 5, (never learned to ride it)
First Wheelchair by 10
Full Spinal Fusion at 14
Heel Cord Lengthening at 15
Caregiver Abuse at 15 (horrifying!)
Mainstreamed in school junior year (almost straight A's)
First Prom at 17 with a date ;-)
Over the years I have always moved forward...but it wasn't until recently that I would reach out to my support people
when life was just to much to take...
If I could give any advice at all to the parent facing DMD it would be don't do it alone, people out there care, people here at PPMD care, I care...
LOVE TO ALL !!!
Misty (Luke's Mom)