Giving Thanks to You
This time of year, all of us at Parent Project Muscular Dystrophy like to take a moment to look back, reflect, and give thanks. And as a member of our inner circle, you’re vital to our work.
I’m thankful to you, for the part you play in our vibrant PPMD community, and for taking such an active role in our accomplishments this year:
Research — We’ve seen promising therapies make it further into the clinical trials pipeline, including Duchenne’s first-ever Phase 2b clinical trial with PTC 124 and the first trials in Exon Skipping . We’re thankful to our relentless, brilliant researchers for getting us ever closer to the day we end Duchenne.
Advocacy — In this heated election year, we weren’t sure if our Advocacy efforts were going to prevail. When President Bush signed the renewal of the MD-Care Act into law, it was a day for the entire muscular dystrophy community to celebrate. We’re thankful to our many tireless advocates, who worked so hard to make sure our voice wasn’t lost in the halls of Congress.
Community — Despite tough economic times and high gas prices over the summer, our annual conference was the biggest yet. We’re thankful to the researchers, physicians, and other presenters, as well as the PPMD families for their participation in this event. We are also thankful for all of your support for the Run For Our Sons teams, the Coach to Cure MD campaign and all of the local events that demonstrate our unity and passion.
Education — We are grateful for the outreach and education that DuchenneConnect has provided for the worldwide Duchenne population. We are also thankful to the Centers for Disease Control and Prevention, with whom we collaborated to educate families and healthcare professionals. This year alone more than a 1,000 families reached out to us because of our education efforts. We’re thankful to our many partners that help raise awareness around the country.
As I look back at these accomplishments, I am struck by how thankful I am that the Duchenne community is one that’s passionate about affecting change. You are a community that gets things done.
And I would love to hear what you’re thankful for. Please take a moment to share your favorite accomplishments from this past year and who or what you have to thank for them.
Happy Thanksgiving from our family to yours!
I’m thankful to you, for the part you play in our vibrant PPMD community, and for taking such an active role in our accomplishments this year:
Research — We’ve seen promising therapies make it further into the clinical trials pipeline, including Duchenne’s first-ever Phase 2b clinical trial with PTC 124 and the first trials in Exon Skipping . We’re thankful to our relentless, brilliant researchers for getting us ever closer to the day we end Duchenne.
Advocacy — In this heated election year, we weren’t sure if our Advocacy efforts were going to prevail. When President Bush signed the renewal of the MD-Care Act into law, it was a day for the entire muscular dystrophy community to celebrate. We’re thankful to our many tireless advocates, who worked so hard to make sure our voice wasn’t lost in the halls of Congress.
Community — Despite tough economic times and high gas prices over the summer, our annual conference was the biggest yet. We’re thankful to the researchers, physicians, and other presenters, as well as the PPMD families for their participation in this event. We are also thankful for all of your support for the Run For Our Sons teams, the Coach to Cure MD campaign and all of the local events that demonstrate our unity and passion.
Education — We are grateful for the outreach and education that DuchenneConnect has provided for the worldwide Duchenne population. We are also thankful to the Centers for Disease Control and Prevention, with whom we collaborated to educate families and healthcare professionals. This year alone more than a 1,000 families reached out to us because of our education efforts. We’re thankful to our many partners that help raise awareness around the country.
As I look back at these accomplishments, I am struck by how thankful I am that the Duchenne community is one that’s passionate about affecting change. You are a community that gets things done.
And I would love to hear what you’re thankful for. Please take a moment to share your favorite accomplishments from this past year and who or what you have to thank for them.
Happy Thanksgiving from our family to yours!
Comment
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Comment by Sarah Durham on December 9, 2008 at 12:58pm
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I'm thankful both for my own family and for the family that (we all) create from friends and colleagues who surround us every day, offering support and encouragement when we're down or to celebrate with when times are good.
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Staff Comment by Pat Furlong on December 8, 2008 at 12:35am -
On Saturday, we had a light dusting of snow in Middletown, Ohio. I was in my office and directly above my desk is a photo of my sons, Chris and Patrick, all bundled up standing and smiling on the same sort of day. I miss them every day and every hour, but I am thankful that they were mine to love.
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Comment by maragret b massaqwe on December 7, 2008 at 4:29am
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we say thankx for invite me on your web site for to my familly to project PPMD iam very happy and enjoy marrie christmass god be with you and yours
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Comment by JoAnn Grimes on December 4, 2008 at 9:57pm
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I am so vary thankful for my very special son, Tucker. He started kindergarten this year and is doing much better than we ever thought. He still has delays but, is coming along well!! Also very thankful that there is an organization like this for parents like us.
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Comment by Debra Canter on December 3, 2008 at 4:31pm
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I am thankful for PPMD and how the organization gives me hope which I desperately need to get through and remain strong. I am thankful that we had our youngest tested and he does not have DMD. Both my boys are treasured rays of sunshine.
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Comment by Nabeel Ahmed on December 2, 2008 at 3:34am
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I am thankful for Pat and Kimberly and all scinetist recrearcher the staff at PPMD for making the organziation so effective,I am thankful to my son wife and two daughters, and hope that my son is able to particpate in the PTC 124 2a extenstion trial
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Comment by Rebecca on December 1, 2008 at 4:37pm
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I am thankful that Matthias (who has BMD) learned to ride his bike this year (just after he turned 9)!
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I am thankful for the phase 2b clinical trial of PTC 124 and am hopeful about the results
Thank you for your kindness and help.
Bala subra manian.c
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Comment by Tiffany Cook on November 30, 2008 at 9:17pm
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am thankful for LIFE and all that it has taught me and all that is yet to come. Although the road has been tough, my son's diagnosis with DMD has taught me what's most important in the world. I truly believe in living every moment to it's fullest. I am thankful to all of the care we have received from Dr. Jerry Mendell's clinic at Nationwide Children's Hospital in Columbus, OH. I am also thankful for the way this illness has and will bring my family closer together. All through God's "Wil".....
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Comment by Niccole Papp on November 30, 2008 at 6:35pm
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My Family and I are so thankful that there are people like you that never give up and keep us aware of all the news on current research as we pursue the cure to end Duchennes. It's people like you and the PPMD community that give us all hope. I recently saw a bumper sticker while driving and it said GOT HOPE? and that's what I live by every day knowing there is a cure on the way! God Bless you and have a Happy Holiday.
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