PPMD Community

First Visit to Cincinnati Childrens and Doctor Wong

After being told yesterday that it would be August or September before getting Eric into Cincinnati Children's to see Doctor Wong, i got a call today that an opening materialized next week. Flights and hotel are not yet in place, but I told my boss "I am outta here next week!" and got full support to do so.

In order to be affordable at all, I will have to fly out with him on Saturday and tool around Cincinnati for 2 1/2 days prior to the three days of hospital time. We will also have to stay overnight again and leave on Friday since no flights back to Austin on Thursday. I hate to pull him from another week of school, but it will just have to be so.

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Comment by Phyllis on March 21, 2009 at 9:06pm: Hi Doug..
My name is Phyllis Seger and my son Kyle is 8 years old and dx with DMD in december. We are seeing a neurolofist already but sice i became a member onPPMD I have read about Dr, Wong and the Cincy hosp. CAn u possibly email me on how do you go about getting an appt. how the whole process works...I am searching everywhere and every day in and out of the US for treatments or anything that can help my son. I am so glad for u and hope you get the news and outcome u r looking for...i will pray fpr u and good luck..if anyone else care to share it would be appreciated..thanks

Comment by Kristin Hiatt on March 19, 2009 at 9:29am: Hi Doug,
I am so sorry to hear about Eric's dx, but for help and support you've come to the right place. This is an amazing community, we know how you feel and we are all here for you always. Eric will get the best possible care from Dr. Wong and her staff, and so will you. There is also a family on this site that lives in Cincy and typically has families who are visiting Dr. Wong stay with them. We met them last time we were there and they were wonderful, her name is Leslie Guzman. Please let me know if we can do anything to help you or if you just want to talk. Have a safe trip. Kristin

Comment by Angela on March 18, 2009 at 11:18pm: I know it's late notice, but try this and see if you can get some help with flights:
http://www.patienttravel.org/resources.html

Ang :)