Engineering and Duchenne-not two words you typically hear in the same breath. I guess I should back up and explain. My name is Hannah Ware, I am the sister of Seph Ware, who was diagnosed with DMD in October of 2005. I am a student at the Colorado School of Mines in an engineering program. Still wondering what that has to do with Duchenne? Each semester, the students at Mines are assigned a design project. This semester, the students have been asked to design a marketable toy which is STEM (Science, Technology, Engineering, and Mathematics) oriented by April 28th of 2014. Meaning, one day soon, this toy could be available to the DMD community.
The team I am a member of, Curious Creations, has chosen our target market to be boys with DMD who are between the ages of 11-14. The toy we are creating will be one that all kids can play with, but is designed for those who have limited upper mobility and can be ‘affixed’ to a wheelchair if necessary. Our goal is for the toy to be future oriented, engaging, encourage socialization, and to create interest in a STEM related subject.
In order to thoroughly address the needs of our target group, we would like to hear from the parents and boys themselves, as we feel your input is invaluable to the design of our toy. In order to get your input Curious Creations has created two brief surveys, one for you, the parent, and one for your child. The information gained from this survey will influence the design of the toy so that it better fits the needs of your son and will be presented to our potential production company.