behaving like a "normal family" is so important to my husband and i. it is so easy to fall into the "dmd family" trap. duchenne is always here, its underneath everything we do, every choice we make, from our home addition to our vacation and van choice, but it does not need to be the focus of every day. we spent the weekend with three of our boys, austin, max and baby james at the double h ranch in lake luzerne ny. this place is the best place in the world, i am sure of this. the boys went there sponsored by the mda for camp last summer, and had a blast, they still talk about it. we were offered a chance to spend the weekend there for adaptive skiing and various other family activities, we knew it would be fun, but we had no idea how much fun it would be. we were greeted as if we were famous, and treated that way for the weekend. the boys were wisked up the mountain with two volunteers each, our baby was entertained by a team of energetic girls in the lodge, my husband and i were offered skiing (he did, i didn't) or just time to relax and watch our boys ski. every parent needs a chance to be proud of their child,and every child needs to be proud of themselves. my boys are wonderful children, but basic skills are so difficult for them, physical stuff, but also learning at school. the look on their faces was priceless as they competed in races down the hill, and won giant stuffed animals during the carnival at the lodge. i was given an oppertunity to cheer and clap for the boys as they reached the bottom of the hill, they were proud, and i was too. i think too often we are confronted with things we cant do, things that are too hard to even try, but with the help and support at the ranch we took the boys sledding for the first time in years, skiing for the first time ever and on a family vacation we will never forget. its times like these that duchennes isnt so bad, its still there, but it just isnt so important.

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Comment by Christine Piacentino on March 29, 2009 at 11:57am
Hi Jenn, Our son has been going to Double H for a session in the summer for the past couple of years. They do an awesome job! He loves it and can't wait to go back each year.
Comment by Jacobs Mommom on March 24, 2009 at 8:17pm
How do we get intouch with the ranch?
Comment by Cheryl Markey on March 24, 2009 at 3:17pm
Exactly!!!! Am glad your family had an awesome time!!!!!

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