I would like to know if they're are any families who have started their child on the steroid deflazacort? As you may know, this drug is not produced in the U.S. It can only be purchased overseas. Our neuromuscular physician prescribed it for our son who has DMD. I'm just curious if anyone has met any logistical challenges trying to procure this medication. We've met challenges in communicating with the medical facility(faxing). I would also like to know how your child is tolerating the medication. Our son is at the stage where he needs to be on a corticosteroid; any insight or feedback is helpful, thank you.

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Comment by Donna on November 4, 2011 at 1:27pm

Our son uses deflazacort and has tolerated it very well.  We get it from:

http://www.masters-uk.com/medicines/home.php

I've been very happy with their turnaround time.  An individual there that I have communicated with a number of times has also been very helpful. Her name is Julie Emms.  Email address:  julie.emms@mastersglobal.com

 

Hope that helps. 

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