Can you believe 2017 is just around the corner? It will be here before you know it and PPMD is busy putting together an exciting list of events that will continue to connect and inform our Duchenne community. It’s already a packed new year!
Check out where your PPMD family plans to be in 2017 and mark your calendars!
More details for each event will be provided as information becomes available.
The PPMD Advocacy Conference, held in the first quarter of each year, is the only officially organized gathering on Capitol Hill for the Duchenne community. Each year, participation at the PPMD Advocacy Conference grows. Scheduled visits on Capitol Hill are arranged for all attendees, giving a face and a voice to PPMD’s advocacy agenda. Registration is now open for the 2017 Advocacy Conference: February 12-14 in Washington, DC!
For 22 years, PPMD has brought together families with leading experts, care providers, and industry partners through our Annual Connect Conference, FACES meetings, and Roundtables. The Connect Conference continues to grow with more researchers, clinicians, and pharmaceutical companies joining entire families who have found the conference as an opportunity to directly interact with thought leaders and reunite with friends. Save the Date for the 2017 Connect Conference: June 29 to July 2 in Chicago, IL!
In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to cities across the country.
Combining forces with Certified Duchenne Care Centers, FACES coordinators, and DuchenneConnect, and with financial support from industry partners and resource providers, the PPMD team and a rotating roster of special guests will host a FREE day-long meeting packed with important information you need to know. Certain cities will also provide the opportunities for professionals to register for CEU-accredited contact hours.
Boston, MA – University of Massachusetts – October (Date TBD)
West Virginia – City & Date TBD
*More details for our 2017 events will be provided on our website as information becomes available.
But regardless, we want you to remember that PPMD is here for you and your family. Don’t hesitate to reach out whenever you or your family have questions about Duchenne. If we don’t know the answer, we’ll get it for you.