"Care Considerations in Duchenne Muscular Dystrophy" the first ten years...


The Roundtable will provide an invaluable opportunity for parents and family members of boys with Duchenne Muscular Dystrophy to gather with practitioners, researchers, and other parents in an informative and supportive environment.  It is our sincere hope that the Roundtable will facilitate an ongoing dialogue amongst the participants and the presenters so that we may achieve optimal care for boys living with Duchenne.

Preview of Presenters:

  • Elise Townsend, Ph.D. Pediatric Neuromuscular Physical Therapist, MGHfC
  • Craig Canapari, MD, Pediatric Neuromuscular Pulmonologist, MGHfC
  • James Poysky, Ph.D. Licensed Psychologist, Pediatric Neuropsychologist, Texas Children’s Hospital
  • Ana Maria Rosales, MD, Pediatric Neuromuscular Cardiology, MGHfC
  • (Additional presenters and topics to be announced)

 

Massachusetts General HospitalRichard B. Simches Research Center

185 Cambridge Street, Boston(Shared parking lot with Whole Foods and CVS)

Saturday, November 12, 20119:00 am to 3:00 pm

Continental breakfast and lunch provided

**RSVP Required by November 5, 2011, 781.585.5566 or info@jettfoundation.org

Please let us know if you will need child-care, as per MGH safety policy, children under 18 are not allowed in the research building, however, we will provide child care just a short walk away with ** prior arrangements.

 

Airport and lodging: 

 

*Special thanks to MGHfC, Pediatric Neuromuscular Team Members, the Presenters and Ryan’s Quest Foundation (www.ryansquest.org) for this opportunity.

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Comment by Char Burke on October 19, 2011 at 12:44am

Hi Christine - you should set up a web pod - so that others from out of the area could dial into and log on to www to participate when flying to MA isn't do-able.  I think you can do with the phone company.  Best Char Burke

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