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Calling All Adults with Duchenne/Becker – This Means YOU!

Ever wished you could change the world – or at least your piece of it? Been looking for a way to engage a bit more? Have personal experience that you’d like to see be better reflected in policy and program efforts?

PPMD is seeking Adult members of our Duchenne/Becker community to serve on the newly-forming PPMD Adult Advisory Council (PAAC). Please consider lending your time, talent, and vision to paving our pathway forward.

Application deadline: Friday, October 17th. See below for details.

 

About the PPMD Adult Advisory Council (PAAC)

The PPMD Adult Advisory Council (PAAC) serves to ensure that the voices of adults living with Duchenne & Becker Muscular Dystrophy are reflected in PPMD’s legislative, policy, and program activities. PAAC members serve in a formal advisory capacity for their respective term and maintain leadership over a PAAC initiative throughout that term; PAAC initiatives are determined by the PAAC membership and PPMD Executive Team.

 

PAAC Member Requirements

To be eligible to serve on the PAAC, members must be age 18 or older at the time of application and diagnosed with either Duchenne or Becker muscular dystrophy. All PAAC members are required to participate in monthly Council conference calls or webinars. In-person meetings will occasionally be held and meeting attendance is strongly encouraged but not required for membership.

 

To Apply for PAAC Membership Consideration

Please submit a brief statement of interest, along with a brief biography, and resume (optional) to Annie Kennedy, PPMD Senior Vice President – Legislation & Public Policy. Your Statement of Interest should include information about what contributions you feel you could make to the PAAC and what (if any) leadership and committee experience you have had in the past. Please note that inexperience will not disqualify your application.

Application Deadline: Friday, October 17th.
Submit via email: Annie@parentprojectmd.org

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