We have a busy few days ahead of us. Doctors appointments for Charlie and for me, plus school and Christmas stuff. I’m sure my schedule is no different than most of yours this time of year! But I wanted to take a second to let you know, if you don’t already, about my personal “parent project” for 2009.
After being so moved by this summer’s conference, I am helping PPMD raise money to support other educational workshops on topics such as Endocrine and growth issues. For me it is a tangible way to help my boys. I have set a fundraising goal of $8,000 to aid future education projects. My family is especially interested in encouraging experts to examine the effects of Human Growth Hormone on boys with Duchenne, in hopes that parents will be able to weigh this information and make informed choices on care.
We are all working our way through incredibly difficult economic times and I know the holidays are especially tough. But if you do have a little bit that you can give to PPMD and are interested in the same new treatments we are, please visit https://secure2.convio.net/ppmd/site/Donation?ACTION=SHOW_DONATION_OPTIONS&CAMPAIGN_ID=2882.
Thanks and happy holidays!