As you read this month's newsletter, the 2012 Summer Olympics in London are coming to a close. The world’s best athletes are heading home with their medals or their hearts broken, but all of them taking with them memories that will last a lifetime. For this community, we will remember an Olympian who swam for our sons and daughters who can’t. Ryan Lochte captured Olympic gold (and silver and bronze) and our hearts. And while you cheered him on, you gave towards to potential therapies that PPMD feels strongly about – tamoxifen and SERCA2a. You too, are a champion of Olympic proportions in our eyes! Speaking of champions, we are excited to introduce you to our Featured Voice for August, Sean Quigg the founder of Spaghetti Arms. This is a wildly creative young man who is raising awareness across the country at rock concerts and art festivals. Little does he realize, he’s the real rock star! Finally, as many of you get back into the swing of school and the rest of you prepare for that inevitable first day, we want to update you on the latest care recommendations, give you access to presentations from our 2012 Connect Conference, and make sure you save the date for our upcoming webinar on school issues. Plus, you have to check out the incredible work of photographer Rick Giudotti and Positive Exposure.
Summer’s winding down, but it’s not over yet. Stay cool, keep your head up, and thanks again for supporting our Go for the Gold Campaign!
Where we are & what we're doing
PPMD makes it a priority to attend the most important meetings and conferences related to Duchenne, as well as connecting with the leaders in the field to move research, care, and advocacy forward.
See where we’ve been and where we are going:
Pat Furlong, Founding President, CEO
Read more PPMD Staff Blogs