My family has made advocacy part of our End Duchenne agenda for many years.  My daughter Kat, Jon, and I have always tried to attend the advocacy conference.  This year Kat and I will attend; but Jon’s college studies will prevent him from attending.  Biology, Analytical Chemistry, and English are taking up his free time. Jon really wants to make sure he doesn’t miss any of these classes or miss any assignments.

Even though Jon won’t be able to take the time off from his college course load to attend the conference; he plans on getting involved by participating in the packet drop off campaign.  This is a very easy and effective way anyone can participate from home. Visit and check out option #2 to make your voice heard from home.

This year more than ever we need everyone’s voice!

Jon was featured as the February Voice of Duchenne.   Please take a moment to meet Jon.

Jon and his sister Kat.

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