we need to unite as parents here in florida to change the actual laws concerning med-waiver qualificatons since its very hard for young adults with dmd and their families to get the help they need in the most critical stages of these condition .some of us parents in order to keep our sons home we provide 24/7 caregiving while the other parent have to work all the time to provide for the needs of the family leaving little or no time to help. we need more help from our state since they have waivers for specific conditions and some of them with no waiting list. we need to advocate for adults with dmd that require lots of help as far as caregiving,special equipment and services that when they turn 21 are taken away from them even thou is a lifetime condition that the older they get if a cure is not found the more difficulties they are going to encounter please stand with me and help me

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