With the initiation of 4 states ABLE programs already begun and Oregon having just anounced that their program will launch in December, any qualified individual (meaning most families with Duchenne) can open their accounts in 2016, if interested. We have previously shared information about the ABLE program and the ABLE Resource Center and have received many inquiries about the various state programs. If you’re considering opening an account and making end-of-year contributions, the side-by-side comparison tool will help you select the state program that will best meet the needs of your family.
In addition, several ABLE federal improvement bills are working their way through Congress to address provisions that would improve this:
Both of these bills have advanced from the Senate Finance Committee and now head to the Senate floor.
A third bill, the ABLE Age Adjustment Act (HR 4813/S 2704), which would raise the eligibility age of onset of disability from 26 to 46 enabling individuals who become disabled later in life to open ABLE accounts (this would benefit our late-onset Becker community members). This bill has not yet moved in the Senate due to the extremely high estimated cost of implementing the bill, while implementation of both the ABLE to Work Act and the ABLE Financial Planning Act have been estimated to be relatively low.
PPMD will continue to work with coalition partners to move these bills forward to work toward equality for members of our community.
For a refresher in what the ABLE Act and ABLE accounts are all about, read my previous blog and FAQs.