Parent Project Muscular Dystrophy, The Muscular Dystrophy Association, and the Foundation to Eradicate Duchenne worked closely with their champions on the hill for months in order to introduce the strongest possible piece of legislation. We would like to highlight all the muscular dystrophy groups who agreed to sign onto our multi-organization letter, hand delivered to every member of Congress during our Advocacy conference on February 11-12, 2013. The letter sent a strong message to Congress about a united effort in favor of the renewed legislation. 

 

The letter for Congress was signed by:

  • Charley's Fund
  • Coalition Duchenne
  • Cure CMD
  • CureDuchenne
  • Defeat Duchenne, Inc
  • Duchenne San Diego
  • Facioscapulohumeral Muscular Dystrophy Society (FSH Society)
  • Foundation to Eradicate Duchenne (FED)
  • Friends of FSH Research
  • Hope for Javier
  • Jain Foundation
  • JB's Keys to DMD
  • John Owen's Adventure, Inc
  • Liam Hiatt Foundation
  • Muscular Dystrophy Association (MDA)
  • Parent Project Muscular Dystrophy (PPMD)
  • Rally for Ryan, Inc.
  • Save Our Boy Foundation
  • Team Joseph
  • Two Smiles One Hope Foundation
  • Zack Heger Foundation

 

We will continue to keep you up to date as we collect cosponsors. This process will take several months and will then move to committee action before going to a vote.

 

And please continue to encourage friends and family to reach out to their members of Congress and ask them to support the Reauthorization of the MD-CARE Act.

 

 

Related links




Ryan Fischer, Director of Outreach & Advocacy
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