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65 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget

With Congress not wrapping up spending bills for Fiscal Year 2017 until we were more than 7 months into the fiscal year, the FY 2018 budget and appropriations (funding) cycle will be interesting to say the least. The Trump Administration released a preliminary — or “skinny” budget -- in March but did not release a more complete budget until the end of May.
The delayed timeframe for completing FY 17 and beginning the FY 18 budget cycle means that work that typically plays out over many months will now be tightly compacted.

Despite these challenges and uncertainties, the Duchenne advocacy community once again helped deliver a strong FY 18 appropriations letter in both the House and Senate.


The FY 18 House letter – led by Congresswoman Doris Matsui and Congressman Peter King – was signed by a total of 47 Representatives. The FY 18 Senate letter – led by Senator Roger Wicker and Senator Debbie Stabenow – was signed by 18 Senators. See below for the list of signatures.

These sign-on letters demonstrate the solid Congressional support behind Duchenne research, public health, drug development and patient support initiatives. The language advocated for by these letters helps set policy priorities at federal agencies. Given the tremendous level of uncertainty at the federal level today, such direction is more critical than ever before.

Over the coming weeks and months, House and Senate Committees will work on these bills. PPMD will continue to engage with our Congressional supporters and the members and staff on the key committees and will update our advocates with every development.

Based on past years and given the myriad issues on the legislative agenda right now, we don’t expect these bills to be finalized until much later in the year. For now, we should thank our letter leaders and all who signed onto these important requests.

And we must always remember that advocacy is not a single day, week or month but rather a 24/7 activity and that all advocates should develop relationships with your members of Congress particularly during these uncertain times.

 

Senate

House

 

 

Julia Brownley

D-CA-26

1.     Wicker (R-AR)

Mike Capuano

D-MA-07

2.     Stabenow (D-MI)

Tony Cardenas

D-CA-29

3.     Angus King (I-VA)

Lacy Clay

D-MO-01

4.     Chris Murphy (D-CT)

Steve Cohen

D-TN-09

5.     Klobuchar (D-MN)

Chris Collins

R-NY-27

6.     Franken (D-MN)

Ryan Costello

R-PA-06

7.     Warren (D-MA)

Danny Davis

D-IL-07

8.     Shaheen (D-NH)

John Delaney

D-MD-06

9.     Duckworth (D-IL)

Mark DeSaulnier

D-CA-11

10.   Blumenthal (D-CT)

Ted Deutch

D-FL-22

11.   Sherrod Brown (D-OH)

Dan Donovan

R-NY-11

12.   Gary Peters (D-MI)

Eliot Engel

D-NY-16

13.   Bennet (D-CO)

Elizabeth Esty

D-CT-05

14.   Gillibrand (D-NY)

Lois Frankel

D-FL-21

15.   Susan Collins (R-ME)

Raul Grijalva

D-AZ-03

16.   Coons (D-DE)

Brian Higgins

D-NY-26

17.   Markey (D-MA)

Jim Himes

D-CT-04

18.   Van Hollen (D-MA)

Eddie Bernice Johnson

D-TX-30

Bill Keating

D-MA-09

Dan Kildee

D-MI-05

Pete King

R-NY-02

Zoe Lofgren

D-CA-19

Stephen Lynch

D-MA-08

Carolyn Maloney

D-NY-12

Sean Patrick Maloney

D-NY-18

Doris Matsui

D-CA-06

Jim McGovern

D-MA-02

Patrick Meehan

D-PA-07

Eleanor Holmes Norton

D-DC

Gary Palmer

R-AL-06

Collin Peterson

D-MN-07

Chellie Pingree

D-MA-01

Mark Pocan

D-WI-02

Jared Polis

D-CO-02

Kathleen Rice

D-NY-04

Janice Schakowsky

D-IL-09

Bradley Schneider

D-IL10

Kyrsten Sinema

D-AZ-09

Louise Slaughter

D-NY-25

Adam Smith

D-WA-09

Chris Smith

R-NJ-04

Jackie Speier

D-CA-14

Tim Walz

D-MN-01

Peter Welch

D-VT-01

Frederica Wilson

D-FL-24

John Yarmuth

D-KY-03

Lee Zeldin

R-NY-01

 

 

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