Even though Kelvin is only 5, he'll be 6 in Sept., he and his sister and grandma and grandpa got to spend the day at the MDA camp. My brother is a respiratory therapist and volunteered there for 3 days, so they got to go to family day. My parents couldn't believe what an amazing job they did. Kelvin can't wait to go and stay next year. Of course, I'm not ready for that (for him to stay somewhere without me), but he had so much fun, he wants to live there. Of course, I remain positive, that through our strength and prayers; the doctors, scientists and researchers will soon find and approve help for our little ones. Until that time, we'll massage, we'll stretch, take steroids, swim, hot tub it, take rest periods while playing or too much walking, wear night braces, take a list of suppliments, get help from Dr. Wong and her fantastic staff, learn, learn, learn what we can, eat healthy, have fun every day with whatever we can and just enjoy life!