I have 3 sons with DMD. Jeffery chris and Jo. 16, 6 and 3. I don't know where to start. I'm a working single mom and going to school full time to try and give my kids a better life. I don't know how to balance it all, I don't have time to be deppressed or even try to think about what the future holds for my boys. How do we balance it all IEP"s PT/OT Doctors App. I feel like I'm falling apart I think about it every day how much longer do I have with them. Is today the day that one of my boys gets sick. How long do we have whenever I think of my 16 year old I just want to turn back time and make him a little boy again. Every night I get down on my hands and knees and pray to god to heal my boys. Please spare my boys. I"m don't know how I will go on if I lose even one of them. I just need someone to talk to besides my family who is already grieving.

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Comment by Teresa on November 4, 2008 at 9:57am
Tina, Thank you that is great advice. I'm taking things one day at a time. I try to work through things Sometimes I feel like I can do it all other days my depression gets in the way. My jobs helps I do intake for housing I help people who are homeless and that are struggling it helps me stay focused on whats important.
Comment by Tina on November 1, 2008 at 8:49pm
Teresa
There is a balance and you have to find it. You might have to let go of some things while searching for that happy medium. I learned a few years ago, I cannot win the "Best Mom of the Year," "The Best Nurse of the Year," "The Best Wife of the year," " The Best Housekeeper of the Year" award all at once, if at all. I try to divide myself ( so-to-speak) and do the best that I can at all of these jobs. Everything you are trying to accomplish, and I realize most of this you did not ask for, is a trememdous amount on you both physically and mentally. I am hoping you have a good support system in place to help you with the demands placed on you everyday. Life in general can be overwhleming, do take it one day at a time, ask for help.
Comment by Teresa on November 1, 2008 at 4:42pm
Kulwant Pannu I took my three youngest to the park yesterday we enjoyed very much I tried not to think of the bad stuff just the good I enjoyed the kids playing and I cherished it. Sometimes I forget to do that. My heart just aches for them all the struggles that they go through each day. I'm glad they have each other. I'm glad I have them . Teresa
Comment by Kulwant Pannu on October 28, 2008 at 1:10am
Hi Theresa,
First of all my heart goes out to you. My son is 2 and was diagnosed 2 months ago. Each day is very difficult and sometimes unbearable to face but regardless each of those days I cherish and will remember forever. In the last couple of months I have become a very strong person and have learned to face each day for what it is. Being a single mother and dealing with this shows me you definately are strong and determined. Shower your boys with your love. Stay strong and pray. If you would like to talk let me know.
Comment by Diane Spiess on October 27, 2008 at 11:36pm
Hi Theresa,
First of all hugs to you i cant imagine your situation single mom school wow it makes my head spin thinking about it! i have one son he's 22 im his full time caregiver and hubby is a big help at night but i have nursing to give us a break is thier any way you can have nursing or even a aide to help ? Also i found it most helpful to live in the now and try to be informed with with out thinking to much about the futher if that makes sence hang in thier iev been told many times god doesnt give us more than we can handle but im sure your thinking enoughs enoughs!! hugs to you and your boys! if you need to talk i could give my email to you if you'd like.

Diane
Comment by Marian Lamberson on October 27, 2008 at 10:12pm
Hi Theresa,
Hang in there. You sound like a very strong woman. All I can tell you my dear is to hang in there and take it day by day, as hard as that is. We are not guaranteed one moment, so live in this one. I too have a son with DMD, he is 7 and a blessed angel. I have another son (18 months old) who has his DNA test Wed. I found out a few months ago that I was a carrier after my oldest was diagnosed in July. I live with a tremendous amount of guilt.
Keep working hard for your boys. You are all they have.
You can visit my blog www.thelambersonstory.blogspot.com. God bless all of you. :)

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