I get asked for this information quite often. I'm still getting used to this new site. I thought this might be a way for people to get at the information easily.
You can access the Medic Alert Website at
They provide a bracelet that your son should wear at all times. My son wears his 24 7. I worked closely with my pediatrician and one of the medic alert nurses to determine what should be on the bracelet. My son's information is as follows:
Use Anesthetic Precaution, No Anectine.
Member # 99999999
A card is also provided with the full information on file: This information is as follows:
Medical Information: Use Anesthetic Precaution, Steriod Dependent, Duchenne Muscular Dystrophy
Takes a cortisteriod Deflazacort, Lisinipril, Correg (Include all perscription medications)
Allergies: Contraindication to Halothane, Anectine
Person to notify listed is our Pediatrician and Mom and dad with phone numbers listed.
In case anyone was wondering Anectine is an anesthic that EMT's carry that is similiar to Halothane. Halothane is an anesthetic that could invoke Malignant Hypothermia in Duchenne patients