We just got back from Philly yesterday. The conference was great as usual. Except I've been in funk today. I think I just am over stimulated and pulled from the daily routine where I don't have to be conscious of Duchenne every millisecond of the day. The great thing about the conference is that it gives me a jump start in terms of doing something about this. I want to speak out more, raise more money, help more parents and kids, and just let it be known that there is this community that exists with members who are trying to make sense of something that makes no sense. I feel like we are the little world on the speck of a flower like in that movie, Horton Hears a Who. Like that community, which is not known to the outside world, we are screaming, "Help!" and waiting for the chance that someone out there will hear us and save us. Because of the conference I know we will continue to scream louder and louder, and eventually it will happen...someone will stop their mad rush through this world long enough to hear us. I hope this comes off as a positive perspective...that's how I mean it! Anyway, THE most valuable thing that I always get from the conference is the chance to reunite with my "other" family so that I can feel "normal" and just decompress for a little bit.

Kelli