On December 6, 2012, PPMD held its inaugural End Duchenne Gala in New York City. It was a truly remarkable evening thanks in large part to the organizing committee (Catherine Collins, Anessa Fehsenfeld, Janelle Hester, Vicki Singh, and Paula Zenobio) and a room full of compassionate, generous guests...including acclaimed author,…Continue
Added by PPMD on December 13, 2012 at 4:30pm — No Comments
Participate and Promote International Day of Persons with Disabilities!
TODAY at 3pm CDC will recognize people with disabilities with several activities, highlighted by a special Twitter Town Hall hosted in collaboration with the United Nations and other partners. This special Twitter town hall will focus on how we all can work together to provide an inclusive and accessible health environment for people with disabilities.…Continue
Added by PPMD on December 3, 2012 at 2:16pm — No Comments
Parent Project Muscular Dystrophy (PPMD) founding president and CEO Pat Furlong, has been invited to speak today at the Institute of Medicine's (IOM) Roundtable on Translating Genomic-Based Research for Health. IOM is holding a public workshop today in Irvine, CA titled "Improving the Efficiency and Effectiveness of Genomic Science Translation."
Pat is a member of IOM's Committee on Pediatric Studies and is thrilled to be participating in the discussion "The Role of…Continue
Added by PPMD on December 3, 2012 at 11:00am — No Comments