PPMD's Blog – February 2017 Archive (5)

PPMD Designates Ann & Robert H. Lurie Children's Hospital of Chicago a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named Ann & Robert H. Lurie Children’s Hospital of Chicago …

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Added by PPMD on February 16, 2017 at 12:00pm — No Comments

PPMD’s #EverySingleOne Tour: Los Angeles, CA

Children’s Hospital Los Angeles (CHLA) marked our first stop of the New Year on PPMD’s 2017 Every Single One Tour, held on January 21, 2017. We were thrilled to not only be holding another tour stop at one of …

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Added by PPMD on February 15, 2017 at 10:30am — No Comments

Marathon Pharmaceuticals Pauses Commercialization of EMFLAZA™ (deflazacort)



UPDATE: February 13, 2017, 5:10 PM -- An additional statement from Marathon has been added to the blog



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Today, Marathon Pharmaceuticals announced that they will pause the commercialization of…

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Added by PPMD on February 13, 2017 at 4:00pm — No Comments

PPMD to Host Forum on Access to Emerging Therapies on February 13th, 2017

Following decades of strategic advocacy, research investment, and biopharmaceutical development, the U.S. Duchenne community recently arrived in the post-approval space and is poised to receive additional novel therapies from a robust innovation pipeline.…

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Added by PPMD on February 7, 2017 at 1:57pm — No Comments

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