PPMD's Blog – February 2014 Archive (2)

Parents: Please share your thoughts about clinical trials

Guest post by Joanna Johnson. Joanna is mom to Elliott and Henry, both living with Duchenne muscular dystrophy.



As you may know, PPMD is involved in a study funded by the NINDS to learn about our community’s thoughts about clinical trials. I am on the study leadership team. Being a part of this study has been…

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Added by PPMD on February 13, 2014 at 10:17pm — No Comments

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Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD and mom to Hazel, age 8, and Rain, age 6. Rain has Duchenne muscular dystrophy. Follow Ivy at her blog, Living …

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Added by PPMD on February 7, 2014 at 9:00am — 2 Comments

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