Char Burke's Blog (2)

During this season of holidays, I wanted to pass along an incredible story. I was able to talk to a nurse that cares for a set of twins that have DMD. They are 51!!!!! They have alot of support with …

During this season of holidays, I wanted to pass along an incredible story. I was able to talk to a nurse that cares for a set of twins that have DMD. They are 51!!!!! They have alot of support with medical equipment but are mobile....In fact, they coach teams, go to university games and are out and about quite often! Their quality of life is good. At first I thought that they were BMD but was told that they lost ambulation @ age 8 which certainly would be more consistent with DMD. No steroids… Continue

Added by Char Burke on December 14, 2008 at 11:47am — 1 Comment

Coach for a Cure

Today I feel like we made a contribution for DMD. We participated in the Coach for the Cure. The Coach for a Cure campaign is an arrangement with the American Coaching League. An individual by the name of Brad Todd, has a nephew who has DMD, helped orchestrate the event. Brad has been working for two years to get PPMD on the American Coaching League's dance card if you will. This year, he was successful and today we participated in a commercial that will be aired on Oct 25th during college… Continue

Added by Char Burke on October 7, 2008 at 12:22am — No Comments

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