When PPMD convened the Contemporary Issues in Duchenne Cardiology meeting with National Heart, Lung, and Blood Institute (NHLBI) in July 2014, there were several recommendations.
The strongest recommendations included the use of cardiac MRI as the gold standard for cardiac surveillance and…Continue
Added by Kathi Kinnett on December 8, 2016 at 4:00pm — No Comments
When I joined PPMD in 2012, care for Duchenne was all over the map.
Sadly, there were over 150 clinics spread across the US, but there was no oversight of these clinics – the community did not know who was providing care, the level of care being provided or whether anyone at the clinic actually knew anything about…Continue
Added by Kathi Kinnett on December 8, 2016 at 3:02pm — No Comments