Let’s say that Joe has Duchenne. If Joe breaks his arm and the EMT comes before Joe’s parent arrives, Joe may not remember to tell the EMT that: 1) he has Duchenne, 2) he is on daily steroids 3) he is allergic to penicillin and, in that painful scary moment, he may or may not remember his parent’s cell phone number.
For some people, having a medical ID that…Continue
Added by Kathi Kinnett on September 22, 2017 at 7:23pm — No Comments
Everyone, six months of age and older, needs to be vaccinated against influenza (flu) by the end of October, if possible. Protecting people living with Duchenne is especially important. A 2005 study done by the…Continue
Added by Kathi Kinnett on September 18, 2017 at 10:30am — No Comments
We kicked off our fall Every Single One Tour stops in West Virginia this past weekend! We appreciate all of the families, speakers, and volunteers that spent the day with us in Charleston. …Continue
Added by Kathi Kinnett on September 13, 2017 at 4:30pm — No Comments