Kathi Kinnett's Blog – August 2013 Archive (3)

Major Changes in Physical Therapy Coverage for Individuals with Duchenne and Becker

Obtaining physical therapy (PT) services for individuals with Duchenne and Becker muscular dystrophy, and other conditions for which PT does not result in improvements in range of motion or function, has been a huge source of frustration for patients, parents, and providers.

A recent…

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Added by Kathi Kinnett on August 15, 2013 at 8:00am — No Comments

Salt, Steroids, and Duchenne

“Hypertension” is the fancy word for high blood pressure. Blood pressure is the measure of how much pressure it takes the left ventricle of the heart to squeeze the blood out (the top number, or systolic pressure) and the pressure inside the left ventricle of the heart when the heart is relaxed (the bottom number, or diastolic pressure).…



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Added by Kathi Kinnett on August 14, 2013 at 10:30am — 3 Comments

Transition

This summer, just prior to the 2013 Annual Connect Conference in Baltimore, a group of 40 parents, advocates, and professionals gathered for two days to discuss the needs, and how best to meet the needs, of individuals living with Duchenne.  Historically, Duchenne has been a pediatric diagnosis with no need to discuss adolescent and adult issues – thankfully, those…

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Added by Kathi Kinnett on August 8, 2013 at 11:38am — No Comments

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