Kathi Kinnett's Blog – July 2014 Archive (2)

Duchenne Cardiac Working Group Recap

Care of the heart in Duchenne is not a simple business. As a community, we realize:  



  • Prescriptions for cardiac care and surveillance differ widely between both practices and providers.
  • Large gaps exist in cardiac research.
  • While future goals are necessary, we need a plan, for both cardiac care and research, and we need it…
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Added by Kathi Kinnett on July 15, 2014 at 2:30pm — No Comments

Outcomes Meeting: Laying a Foundation for Outcome Measures

A 6 minute walk test is a 6 minute walk test, right?

Well, maybe not.



It turns out, there can be many variations of the same test. For example, is it done on carpet? On linoleum? On concrete? Shoes on? Shoes off? Socks on? Socks off? Do you start when the therapist says, “go!” or when the child takes the first step? If there’s a “false start” do…

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Added by Kathi Kinnett on July 8, 2014 at 11:30am — No Comments

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