Kathi Kinnett's Blog – June 2014 Archive (3)

206th ENMC Workshop on Adults with Duchenne



We don’t know a lot about adults living with Duchenne: their natural history, cardiac progression on and off steroids, on an off cardiac medications, the effects of other medications and/or supplements, endocrine issues, gastrointestinal issues, urologic issues, gaining and maintaining independence……..the list could go on and on. Who would have dreamed that one day we…

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Added by Kathi Kinnett on June 16, 2014 at 1:06am — No Comments

Pulmonary Care and Duchenne

Recently, Dr. Lisa Wolf (Assistant Professor, Pulmonary Medicine and Pulmonary and Neurology at Northwestern University, Feinberg School of Medicine, Chicago, IL) gave a wonderful presentation at Duchenne Foundation Australia’s Melbourne Symposium. While her presentation was titled, “DMD Respiratory Review 2014: The Younger Years,” she…

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Added by Kathi Kinnett on June 16, 2014 at 12:34am — No Comments

Healthy Summer Snacking & Activity



It’s summer – finally! Growing children are hungry children, and hungry children don’t usually go for the healthy snacks first.



As parents, we try everything we can to get them to eat right: reasoning (this sometimes works), bribery (generally referred to as “creative parenting”) and sneaking nutrients into the foods they love (referred to as,…

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Added by Kathi Kinnett on June 16, 2014 at 12:30am — No Comments

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