We don’t know a lot about adults living with Duchenne: their natural history, cardiac progression on and off steroids, on an off cardiac medications, the effects of other medications and/or supplements, endocrine issues, gastrointestinal issues, urologic issues, gaining and maintaining independence……..the list could go on and on. Who would have dreamed that one day we…
Added by Kathi Kinnett on June 16, 2014 at 1:06am — No Comments
Recently, Dr. Lisa Wolf (Assistant Professor, Pulmonary Medicine and Pulmonary and Neurology at Northwestern University, Feinberg School of Medicine, Chicago, IL) gave a wonderful presentation at Duchenne Foundation Australia’s Melbourne Symposium. While her presentation was titled, “DMD Respiratory Review 2014: The Younger Years,” she…Continue
Added by Kathi Kinnett on June 16, 2014 at 12:34am — No Comments
It’s summer – finally! Growing children are hungry children, and hungry children don’t usually go for the healthy snacks first.
As parents, we try everything we can to get them to eat right: reasoning (this sometimes works), bribery (generally referred to as “creative parenting”) and sneaking nutrients into the foods they love (referred to as,…Continue
Added by Kathi Kinnett on June 16, 2014 at 12:30am — No Comments