Kathi Kinnett's Blog – March 2018 Archive (2)

Center Directors Publish Collective Statement Regarding Patient Access to Approved Therapies

PPMD is proud to announce the publication of a collective statement regarding patient access to approved therapies from the center directors of our Certified Duchenne Care Centers.

There are many ongoing treatment trials for Duchenne and of…

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Added by Kathi Kinnett on March 27, 2018 at 9:00am — No Comments

Duchenne Pulmonary Awareness Video Series

Pulmonary management in Duchenne (all of the care involved with breathing and coughing) can be confusing and difficult to understand. There are many terms, abbreviations, and procedures that all sound very complicated. PPMD – with support from Santhera Pharmaceuticals and input from a panel of parents,…

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Added by Kathi Kinnett on March 13, 2018 at 9:30am — No Comments

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