Kathi Kinnett's Blog – March 2014 Archive (2)

Certified Duchenne Care Center Program

Right now, there are more than 10-12,000 young people diagnosed and living in the United States with Duchenne. These young people are being cared for by clinics both near and far. Every one of them deserves the best care and treatment possible. Families want care and treatment to be transparent; they want to know who is delivering care to their child, what comprehensive care looks like, and which centers are delivering that care. For this reason, a group of experts agreed to give families…

Continue

Added by Kathi Kinnett on March 20, 2014 at 9:00am — 2 Comments

Contemporary Cardiac Issues in Duchenne Muscular Dystrophy

We all know that the heart is a muscle too! Most people and parents living with Duchenne feel that care for the heart, as defined by the Care Considerations, is not as current or as aggressive as they would like. In 2009, when the Care Considerations were published, cardiac care was very…

Continue

Added by Kathi Kinnett on March 5, 2014 at 1:30pm — No Comments

Monthly Archives

2018

2017

2016

2015

2014

2013

2012

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service