Kathi Kinnett's Blog – February 2013 Archive (2)

Enhanced MDA Clinical Pages

In June 2012, PPMD sponsored the first Transforming Duchenne Care meeting. The meeting was organized in response to clinical care discrepancies that exist between centers treating patients with Duchenne/Becker muscular dystrophy in North America. The purpose of this…

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Added by Kathi Kinnett on February 14, 2013 at 4:12pm — 1 Comment

Oxygen and Duchenne

Emergencies always happen when you are away from home, after “office hours,” or over a holiday. Due to this helpful timetable, it is likely that, when an emergency occurs, patients will be seen by professionals who have no knowledge of them or of their (rare) disease. During a respiratory emergency, the first reaction of emergency personnel is to give oxygen. Giving oxygen, without proper monitoring, can be life threatening to a person with Duchenne. Several such emergencies happened this…

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Added by Kathi Kinnett on February 12, 2013 at 11:00am — No Comments

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